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Wednesday, October 05, 2011

Today I’m thankful for medical insurance
I just looked at the calendar of medical stuff I'm doing this month. Wow...

I met with the new neurologist yesterday. He agrees with the cardiologist about the dysautonomia diagnosis. He said that now he needs to get to the bottom of which form of dysautonomia I have because certain forms of dysautonomia don't respond to cardiology treatments (such as pacemakers.)

He got me on a bad day. We'd just returned from a four day trip to Disneyland and I was beyond exhausted. I was having trouble talking and he said, "Let's try something". He had me lay down on the table and wait a few minutes and then asked me questions again. It was much better, and I was able to answer his questions. That was weird, but he said that it was what he expected to happen. I guess I should hook up some sort of laptop so I can work laying down. Yeah! (I'm kidding, of course, but I thought that was really interesting!)

He is sending me for a two hour EEG next Monday, a brain MRI the following Friday afternoon and then depending on the EEG results he'll be having me wear a portable EEG device and will ask me to do what it takes to make myself faint. Not sure I know how to MAKE myself faint, but I do know what to do to lower my chances of fainting so I guess I'll stop. He said he wants to see what my brain activity looks like before I faint. He also is going to send me to a DNA lab after all the test results are back.

In addition to the neurological tests, I have a heart echo on the last Monday of this month. KaCHING!

I need to schedule a follow-up with the cardiologist, and will have the follow-up with the cardiologist the last week of October so I think I should have some solid answers the first part of November.

I'm not sure if there's a whole lot that can be "fixed" from what I've read, but who knows. At least I'll finally have a diagnosis, and maybe I'll give myself permission to take it a little easier on myself.

Nah- who am I kidding. I don't know the concept of taking it easy on myself.

RisibleGirl was blabbing on about her adventures again on 10/05 at 12:51 PM

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Categories: DailyDysautonomiaHealth

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