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Yay! I have a brain!
Boo! It's damaged. I went to the neurologist today, and according to the MRI my brain is showing a 'reaction' around the bone where I hit my head. I think she thought I'd just say, "OK- thanks for the info" and leave it at that. I asked her what she meant by 'reaction' and she said that I hit my head a lot harder than she thought and have some damage. She said that there is also bruising in the front of my brain and related it to shaken baby syndrome. When I hit my head, my head bounced off dresser and whipped back again against the wall. So, my brain bounced around inside my skull. I'm laughing at the first post I made after hitting my head. "I'm OK- it's no big deal". Ha! I guess that officially makes me not very credible. Who would have thought that getting up to go to the bathroom at night could be so darned dangerous? So long and short- what this means is that this stuff will probably never go away, and it would be very dangerous for me to hit my head again. She reiterated what she told me before- that what I'm experiencing will come and go, sometimes worse- sometimes better. But will probably never gone completely. Even though she's told me this before, I started crying in her office because I'm SO tired of all of this. I told her that I'm used to people thinking that I'm smart- and I feel stupid these days. I feel like people think I've been drinking because I run into walls and wobble around when I'm walking or standing in line. For Pete's sake, I took my home phone receiver with me to the doctor the other day. Yeah- I don't know what I was thinking. I went so far as to put it on the seat next to me in the car and then pick it up and take it into the doctor's office. At one point I looked at it and it occurred to me that my home phone did not belong in the doctor's office- so I hid it in my purse. Scary that I'm driving, isn't it? I'm trying to not do too much of that. My neurologist is a really nice, understanding doctor and I really feel comfortable with her. She made me feel like she really understood. She said she wants to support me through this and said that she wishes there was something she could do to make it go away. All she can do is make me more comfortable when the symptoms act up. i.e. drugs. I'm now on an additional drug called Provigil. She said that it's normally prescribed for people with Narcolepsy, but she thinks it will help me be more on my game at work. It's 10.00 per pill, so gave me some samples to try out. I'll give it a whirl. She promised that it won't make me anxious or jumpy (something I'm already taking the klonopin for). Geez, it's like my brain has a mind of its own. ha- pun intended. Today, I feel kind of defeated. But that's today. I guess that now that I know all the facts, I can soldier up and deal with it. Hopefully with grace and a good attitude. I have a video I need to make because of something I got in the mail from my mom. That'll be fun. See? It's not all gloom and doom. Meh. RisibleGirl was blabbing on about another adventure on 11/28 at 01:59 PM
   ![]() wordnerd wrote:
Well, here's the deal, hon. I've been thinking all along that there had to be something like that going on -- thank heavens you now know. It's always easier to deal with something when you know what it is you're dealing with. Big hugs! Let's hope the new meds work for you. Now I'll sit back and wait for your video.    ![]() Chairman Meow wrote:
Good and bad right? Good to know, and no fun to deal with...darn! We love you so much Ris, please let us know if there is anything ever we can do!! ((Ris)) Couple of natural ideas alpha lipoic acid supplements, lots of healing fresh anti-inflammatory food. Most foods in the plant kingdom contain salyclic acid which is anti-inflammatory and healing.    ![]() Stew wrote:
If there's anyone who can deal with this with grace and a good attitude, it'd be you. Wait, am I being nice to you? Oh crap, that slipped out...    ![]() kalliope72 wrote:
I had an extremely bad reaction to modafinil (active ingredient in provigil), but apparently I'm a freak and was the only person in AU to react badly. Of course! :p And yeah, it's damn expensive!! Stick with the drugs and don't feel bad about having to take them. You know the illness, and now you know the treatment. For some reason, people are fine with having to medicate for diabetes, cancer etc, but when it's neurological we feel like we shouldn't. If it improves your quality of life, that's what matters. ((((hugs))) to you Lori. I think you've handled the entire situation, as you do all things, with grace and a good attitude. xx    ![]() Anonymous G wrote:
Like wordnerd, I've been thinking all along that there must be something like this going on to cause so many unusual symptoms. It's good to know. I understand why you're feeling defeated. But now you know what you're dealing with, which will allow you more control. I'm hoping the drugs work well for you. You'll find the right combination and before you know it, you'll be feeling more like yourself again. ((((((RG)))))) lots of love and warm hugs, G xoxoxo    ![]() Yvonne wrote:
Blessings to you. I am glad you now know what you are dealing with....and like the others, I am sure you will find the right drugs to stay on top of your game. You always have such a great outlook, take care. I enjoy your videos.    ![]() Andie wrote:
Now that you know the score, I'm sure you will come up with a gameplan to handle the situation. Because your personality is like that. Are you into or open to other methods of treatment? Like say, acupuncture? That might be able to help you and help decrease the frequency you have to take the meds.    ![]() sarah wrote:
I know how it is - in some ways it's a relief to have a final diagnosis, but it's so much nicer to go through life without anything that needs diagnosing. I really wish you luck in finding the medication that's right for you and I'm so pleased that you have a good medical expert there for you. It can make all the difference to have someone who's good to talk to. *burps to lighten the mood*    ![]() Wickedly Scarlett wrote:
Oh Lori... I don't even know what to say. This has to be so discouraging for you, but I really hope that with time the doctor will be proven wrong and you'll be back to your old self. Until then we'll just keep loving you as you are--wobbly legs and drunk walking and all    ![]() AnnieOfBlueGables wrote:
Better Living Through Chemistry, that is what I always say. . . Just KNOW that there are LOTs of people out here in cyberland who love you (((((((Lori))))))) You make my day, I love visiting your site. a    ![]() PrincessFifi wrote:
Oh, man, life can be so unfair. Of course you cried in the doctor's office. I feel your discouragement and frustration. What we all need is Yet Another Freaking Growth Opportunity, right? I've got an appointment Monday where I'll get to discuss my own mortality with a medical professional. In the face of such things, overachieving and perfectionism start to look like a silly way to spend one's finite amount of energy. I'm thinking about'cha and hoping for the best. Hugs to you, my friend. Next entry: Yay for presents! Previous entry: The good news is that I was ahead of schedule In case you're wondering.... On this day clear back in 2005 I wrote: Still struggling On this day clear back in 2004 I wrote: BJ and the cable guy |